Web Sites


*** The manufacturers web link addresses that are identified throughout the website are offered to reduce internet navigating time by directing you to a company or organization that we are familiar with & that we feel provides good descriptive information. Once having viewed the site listed, we are hopeful that you will be more familiar with the terminology associated with a particular device to enable you to explore these items further as supplied by various companies.
 
 

Assistive Devices for the Less-Abled
“Strategies That Can Make A Difference”

Telephone:  1-716-633-5654
Email: bdbohm@DonnasJourneyWithALS.com
www.DonnasJourneyWithALS.com

 

 

ALSconnection
is a patient driven ALS registry that aims to collect data from persons with ALS. It is coordinated by Dr. Robert Miller, Dr. Jonathan Katz and Dr. Catherine Madison who are physicians with a vast experience in treating ALS patients.
 

This data base aims to collect information from PALS (Person with ALS) who are not yet captured in data bases such as ALS Care.  We choose to collect data on the internet, because we hope to reach more people in different regions of the nation.  The goal is to obtain long-term follow up data and information about quality of life as well as experiences of PALS. 

(Forbes Norris MDA/ALS Center)
http://www.alsconnection.org

 

 

ALS Digest
This open forum digest includes feedback from People with ALS /MND, their Caregivers, Doctors, Researchers and many others with information pertinent to ALS/MND.
To Subscribe to the “ALS Digest”, Send E-mail To:
bro@huey.met.fsu.edu (Bob Broedel)
Or contact Bob Broedel at:
P.O. Box 20049
Tallahassee, FL 32316 USA



ALS Portal for the ALS Community


ALS Network

 

ALS Digest #1194  (10 September 2003)
www.alslinks.com/HTML%20ALS%20Digest/alsd1194.htm

 

 

ALSA Upstate NY . Org

www.alsaupstateny.org

 

 

ALS Nurse.com
www.alsnurse.com

 

 

ALS Support Network

www.alssupportnetwork.com

 

 

ALS Survival Guide

 

 

Aventis Pharmaceuticals Products Inc.
Rilutek (Riluzole) Treats Amyotrophic Lateral Sclerosis (ALS)
(A web Site with extremely helpful information and links to many other significant informative websites )
http://www.alsinfo.com/index.jsp

 

 

Focus on ALS

 

 

International Alliance of ALS/MND Associations

 

 

The ALS Association – USA – National Office
27001 Agoura Road, Suite 150
Calabasas Hills, CA  91301-5104
Tel:  1-818-880-9007
Fax:  1-818-880-9006
Tel:  1-800-782-4747 (Toll-free Patient Hot Line)

E-mail:  alsinfo@alsa-national.org

 

 

Forbes Norris ALS/MND Research Center
at the California Pacific Medical Center

www.cpmc.org/services/als/about/default.html

 

 

Les Turner ALS Organization

www.lesturnerals.org

 

 

Muscular Dystrophy Association (MDA) – USA National Headquarters
3300 East Sunrise Drive
Tucson, AZ 85718
Tel:  1-800-572-1717 (Toll-free in USA)
Tel:  1-520-529-2000
Fax: 1-520-529-5417
E-mail:
mda@mdausa.org
www.mdausa.org

MDA – ALS Division Website

MDA – ALS Information, Articles, & Materials

MDA – “ALS Newsletter”

MDA – “Quest” Magazine

 

 

PALS Have Hope

PALS / CALS – PERSONAL WEB SITES

www.geocities.com/sweekes99/ALS6.html

Project ALS – Finding and funding treatments and a cure for ALS
The mission of “Project ALS” is to bring the best basic science to people
living with ALS in the form of effective treatments and a cure
www.projectals.org

 

 

Ride For Life, Inc.
A not-for-profit organization founded by ALS patients, caregivers and
those who care about people living with ALS

www.rideforlife.com